About ahoy28

I'm 34 with Duchenne Muscular Dystrophy(DMD)and on a vent.If you have any questions about (DMD)or the vent just ask me.

Rollin’ Punches

water-731251_1280I walk, I fall, I get back up, the constant battle of Duchenne

I wheel, I turn over, I get back up, the constant battle of Duchenne

Lose leg strength, lose arm strength, I get back up, the constant battle of Duchenne

Biopsy, Surgeries, I get back up, the constant battle of Duchenne

Rollin’ punches at every turn, I get back up, the constant battle of Duchenne

I thank The Lord above for the strength to deal, the constant battle of Duchenne

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Moving? Only A Mountain?

ImageHe replied, “Because you have so little faith, I tell you the truth, if you have faith as small as a mustard seed, you can say to this mountain, ‘Move from here to there’ and it will move. Nothing will be impossible for you.” Matthew 17:20

Mountains? We all have mountains some big, some small, some may be terrible diseases, some are relationships, some physical difficulties, and some spiritual. All these mountains are different in there own way but not impossible to overcome like in the book of Matthew says if you have faith as small as a mustard seed,you can tell the mountain to move and it will. Some mountains won’t move how you would like but God knows how your different mountains need moving. I have a mountain it’s called Duchenne Muscular Dystrophy (DMD) ,it hasn’t moved how I would like but this doesn’t mean I have too little faith.

9 But he said to me, “My grace is sufficient for you, for my power is made perfect in weakness.Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me. 10 That is why, for Christ’s sake, I delight in weaknesses, in insults, in hardships, in persecutions, in difficulties. For when I am weak, then I am strong. 2 Corinthians 12: 9-10

Sometimes the answer is like what God tells Paul after asking God 3 times to remove a thorn in his flesh, I don’t know what the thorn was doesn’t really matter. Yeah when I was little with my so called mountain I was like why me, why can’t I do things like the other kids, like running and jumping, you see a kid thinks simple like that, glad that was the only concern I had back then, mountains are huge you have to take one step at a time but eventually you conquer that mountain that seemed impossible at the beginning. Conquering doesn’t always mean your done with the problem, sometimes it’s just God showing you how to deal with the problem. I have had difficulties in the past with questions of why me? Now it’s like why not me? You see my weakness as made me strong, by me climbing this hard mountain of a life, I’ve been able to show how strong and powerful my God really is.

13 “Enter through the narrow gate. For wide is the gate and broad is the road that leads to destruction, and many enter through it. 14 But small is the gate and narrow the road that leads to life, and only a few find it. Matthew 7: 13-14

Trees + Hurricanes = Love?

I know the title sounds a little strange, you are probably thinking how could trees and hurricanes represent love. Well I was listening to this song by David Crowder Band ” How He Loves” at first I was like you thinking how exactly does a hurricane show God’s love for us. Then I really started thinking about the lyrics of the song and what they really mean. The way the song describes this is that we are the trees and a hurricane represents God. Your wondering though hurricane? God? How does it compare? Well since we are the trees we all have so called “broken and weak branches” or problems, and God as a hurricane comes through and cleans out these broken and weak branches so we can grow in our faith and show others the strength of God showing them that God can take these broken and weak branches out of our life and use our renewed strength to show His love to others by sharing what God as done for us and explain what true love really is all about not the craziness you see in movies about love. 1 Corinthians 13:4-7 explains love best: Love is patient, love is kind. It does not envy, it does not boast, it is not proud. It is not rude, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. Love does not delight in evil but rejoices with the truth. It always protects, always trusts, always hopes, always perseveres.

 

Ability or Disability? That’s The Question

Well first before the question “Ability or Disability?” is answered we need to know the definition of the two words:

Ability : possession of the qualities to do something; necessary skill, competence, or power: the ability to cope with a problem

Disability: the condition of being unable to perform a task or function because of a physical or mental impairment; lack of necessary intelligence, strength, ect

Don’t you think it’s ironic ability means able to cope with a problem when really the ones coping with a problem are the ones that you say have a disability. Cause actually if you go by the definition of the two words then by definition I should not be able to write this very blog I’m doing right now. Because now I have the possession  of the qualities to do something and have the necessary skill. So how can I be both disabled and still have ability to do this blog? Disability doesn’t even come close to describing this; and if you have ability how exactly are you coping with a problem. I just think it’s just not the right word to use; you see soldiers coming home losing their legs or arms and now you call them disabled when actually they have ability by definition coping with a problem. Yeah they don’t have the strength or power you think they need to have but they have a strength and power in a different kind of way it’s not a physical strength but an emotional strength you can’t get unless you have been through a disability either your born with or happens later in life like a soldier or some terrible disease. So is it really a disability or do you think it’s ability? What do you think,what’s your view on the two words?

Hunting Trip 2011

So me and my dad got up at 3:30am on January 6th to go hunting with this group USSA. We got to Clinton, La at 5:00 and I think got out to Beech Grove Plantation about 5:30 or 6:00 and stayed out till around 9:00 or 9:30am we did not see anything but a rabbit hopping around in the bushes and a crow and some beautiful red birds. So we left there to go warm up and eat. Then we went back out at around 3:30 in the afternoon till it got dark and saw lots of deer there were about 25 deer we could count, it was so awesome seeing all those deer in one place, there were 2 deer that came like 10 or 15 yards in front of us. I was amazed that the deer did not hear us cause my vent makes some noise. And we were running out of daylight it was amazing a deer came in site with minutes of daylight left so took the gun off safety and sucked on this straw thing to pull the trigger and then KABOOM…. the gun goes off…. ears ringing for like a few seconds. For a while we did not know if I hit the deer or not. By this time, it had turned dark and they had to try to find the deer in the dark, after about 5 or ten minutes later they found the deer and I had shot the deer from 150 yards away. Hey I just realized I almost wrote a book. Lol. But it was a great time got to meet some new people going through some of the same type of challenges I go through every day. Which is really cool cause you learn some new tricks that they use to make their life a little easier that I would have never thought of. Well that was long.haha

 

Gun Mount for Wheelchair

The second thing you need to get to go hunting is a gun mount, there is a company called Be Adaptive Equipment LLC that make gun mounts that can handle rifles, shotguns, pistols, and crossbows. If you have no arm or hand movements they have a mount called HQ100 it’s controlled with a joystick that you can use with your chin and mouth. To shoot there is a power trigger called TM100 operated with a sip on a blue tube. If you can not sip there is a power trigger called BT100 operated with a bite. This model is for rifles and shotguns. The HQPM is for pistols and it goes on the HQ100 and is controlled the same way. Here is a video of a guy shooting an AR-15 22LR using the HQ100 gun mount.

Action Trackchair

Well since it is almost fall I’m going to tell you about different accessible ways to go hunting and fishing. First thing you need are some wheels not just any wheelchair will work you need an off-road wheelchair so you can go in the woods and other places you need to go to hunt or fish. The chair you need is the Action Trackchair it can go in mud, sand, go over rocks, and logs all the things you run into in the woods around a pond or lake. Here is a video of the Action Trackchair. Next thing you need is a gun mount I’ll tell you about that tomorrow.